by Patient Voice Initiative | Mar 8, 2024 | Patient Groups, Patients
This document explores the power of patient registries in advancing medical research and improving healthcare outcomes. Authored by a diverse team of experts, this informative guide provides valuable insights into the benefits of patient registries, their technical... 
by Patient Voice Initiative | Feb 2, 2024 | Patient Groups, Patients
Involve Australia, a community-led project coordinated by Australian Genomics, is informed by an expert working group which includes patient advocates, genetic patient support and advocacy group leaders and researchers. It aims to give the public a stronger voice and... 
by Patient Voice Initiative | Oct 27, 2023 | Carer Resources, Patient Groups, Patients
Patient organisations, patient advocates & online patient communities vary in howthey want to interact with pharmaceutical companies. Our research* found many seek clear & transparent published information (or information about how to easily access it) on the... 
by Patient Voice Initiative | Aug 30, 2023 | Patient Groups, Patients, PVI Reports
Enhancing Patient Engagement in Australia. This project involved a strong partnership between PVI and CaPPRe. Community and Patient Preference Research (CaPPRe) are experts in understanding what people value (their preferences) in all important areas of life. CaPPRe’s... 
by Patient Voice Initiative | Apr 7, 2023 | Carer Resources, Patient Groups, Patients
File name : PVI-Glossary-2023.pdf View Fullscreen ... 
by Patient Voice Initiative | Oct 5, 2021 | Patient Groups
by Patient Voice Initiative | Oct 5, 2021 | Patient Groups
by Patient Voice Initiative | Oct 5, 2021 | Patient Groups
by Patient Voice Initiative | Oct 5, 2021 | Patient Groups
by Patient Voice Initiative | Jul 6, 2020 | Carer Resources, Patient Groups, PVI Resources, Tip Sheets, Tips and guides
Download Find out more: Tip Sheet for submitting Consumer Comment to the... 
by Patient Voice Initiative | Jul 6, 2020 | Carer Resources, Consumer Comments, More information about PBAC, Patient Groups, Patients
by Patient Voice Initiative | Jul 6, 2020 | Carer Resources, Patient Groups, Patients, PVI Resources
A two-page guide to the different pathways for accessing medicines and other healthcare treatments in Australia. Online version Trevor-Evans-information-sheet-compressed download Please consider the environment before printing.... 
by Patient Voice Initiative | Sep 2, 2019 | Carer Resources, Patient Groups, Patients, PVI Resources
Quick-guide-to-how-medicines-are-listed-compressedV2 ... 
by Patient Voice Initiative | Aug 14, 2019 | Consumer Comments, More information about PBAC, Patient Groups, PVI Resources
download This tip sheet has been written to help patient groups or health consumer organisations get ready to provide input to the Pharmaceutical Benefits Advisory Committee (PBAC) before a treatment is listed on the agenda. By being prepared and having a... 
by Patient Voice Initiative | Aug 12, 2019 | More information about PBAC, Patient Groups
A check list to help patient groups reduce the possibility of causing harm when collecting and reporting patient information. A longer guide is also available which may clarify issues further. view... 
by Patient Voice Initiative | Aug 12, 2019 | More information about PBAC, Patient Groups
This large, detailed guidance is based on work done in Canada by pCODR. It’s valuable reading for patient groups collecting and report information for input into PBAC. view... 
by Patient Voice Initiative | Aug 12, 2019 | Carer Resources, Health Technology Assessment, Patient Groups, Patients
view online HTAi Glossary for Consumers and Patients – A beginner’s guide to the words used in health technology assessment... 
by Patient Voice Initiative | Aug 12, 2019 | Carer Resources, More information about PBAC, Patient Groups, Patients
download Richard De Abreu Lourenco, CHERE, University of Technology Sydney19 February... 
by Patient Voice Initiative | Aug 12, 2019 | Carer Resources, More information about PBAC, Patient Groups, Patients
Tip-Sheet-for-Submitting-Consumer-Comments-to-the-PBAC-compressedJuly2020 download This tip sheet was written by Lisa Briggs, a Stage IV Lung Cancer Patient and Advocate, whose long experience advocating for life saving drugs to be listed on the PBS means she... 
by Patient Voice Initiative | Aug 12, 2019 | Carer Resources, More information about PBAC, Patient Groups, Patients, PVI Resources
How you can make a difference. PBAC seeks comments from patients and the community to help them better interpret the evidence and to address gaps and uncertainties in the evidence. As the process already involves expert clinicians and researchers, Consumer Comments... 
by Patient Voice Initiative | Aug 12, 2019 | Carer Resources, Healthcare and Medicine, Patient Groups, Patients
BMSA0551_HTA-Process_Infographic_AW06 ... 