Your guide to having a voice in Australia’s healthcare system.

NEW: The Patient Voice Podcast

We believe that understanding the patient’s perspective in navigating healthcare and treatment in Australia is critical to improving the system as a whole.

This premier season, we’re honoured to hear the voices of our incredible podcast guests and spend 40 minutes with each seeing the health system through their eyes as they face the toughest of challenges.


The Patient Voice Initiative is passionate about making sure that decisions about healthcare in Australia are better informed by the knowledge of patients (or health consumers), carers and patient groups. And this site exists to make it easier for you to know how you can get involved and what can make a difference. Here you’ll find:


Information about key decision-making bodies, how you can give input, and what sort of input is more likely to make a difference. We’ve started with medicines reimbursement (the PBS), but there is more to come.


Downloadable tip sheets and other detailed guides for those who want to delve deeper into the who, what, where, why and how of healthcare decision-making. Some are resources we developed with feedback during our workshops, and some are links to great resources created by other people.


Links to key organisations, so you don’t have to hunt all over the web.


Ways to keep up to date with what is happening and meet others, including links to our events, email updates, Facebook and LinkedIn site.

Taking notes at PVI workshop

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Patient Voice

Patient knowledge adding value to decision-making and decision-makers valuing patient knowledge.

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Patient knowledge

The expertise that comes from living with a condition or illness: needs, preferences, experiences.

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Patient training and guidance

Helping you understand the healthcare system, so you know when, where and how to influence decisions about your health.

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