by Patient Voice Initiative | Mar 8, 2024 | Patient Groups, Patients
This document explores the power of patient registries in advancing medical research and improving healthcare outcomes. Authored by a diverse team of experts, this informative guide provides valuable insights into the benefits of patient registries, their technical... 
by Patient Voice Initiative | Feb 2, 2024 | Patient Groups, Patients
Involve Australia, a community-led project coordinated by Australian Genomics, is informed by an expert working group which includes patient advocates, genetic patient support and advocacy group leaders and researchers. It aims to give the public a stronger voice and... 
by Patient Voice Initiative | Nov 13, 2023 | Carer Resources, Patients
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by Patient Voice Initiative | Oct 27, 2023 | Carer Resources, Patient Groups, Patients
Patient organisations, patient advocates & online patient communities vary in howthey want to interact with pharmaceutical companies. Our research* found many seek clear & transparent published information (or information about how to easily access it) on the... 
by Patient Voice Initiative | Aug 30, 2023 | Patient Groups, Patients, PVI Reports
Enhancing Patient Engagement in Australia. This project involved a strong partnership between PVI and CaPPRe. Community and Patient Preference Research (CaPPRe) are experts in understanding what people value (their preferences) in all important areas of life. CaPPRe’s...