by Patient Voice Initiative | Mar 8, 2024 | Patient Groups, Patients
This document explores the power of patient registries in advancing medical research and improving healthcare outcomes. Authored by a diverse team of experts, this informative guide provides valuable insights into the benefits of patient registries, their technical... 
by Patient Voice Initiative | Feb 2, 2024 | Patient Groups, Patients
Involve Australia, a community-led project coordinated by Australian Genomics, is informed by an expert working group which includes patient advocates, genetic patient support and advocacy group leaders and researchers. It aims to give the public a stronger voice and... 
by Patient Voice Initiative | Nov 13, 2023 | Carer Resources, Patients
View Fullscreen... 
by Patient Voice Initiative | Oct 27, 2023 | Carer Resources, Patient Groups, Patients
Patient organisations, patient advocates & online patient communities vary in howthey want to interact with pharmaceutical companies. Our research* found many seek clear & transparent published information (or information about how to easily access it) on the... 
by Patient Voice Initiative | Aug 30, 2023 | Patient Groups, Patients, PVI Reports
Enhancing Patient Engagement in Australia. This project involved a strong partnership between PVI and CaPPRe. Community and Patient Preference Research (CaPPRe) are experts in understanding what people value (their preferences) in all important areas of life. CaPPRe’s... 
by Patient Voice Initiative | Apr 7, 2023 | Carer Resources, Patient Groups, Patients
File name : PVI-Glossary-2023.pdf View Fullscreen ... 
by Patient Voice Initiative | Jun 22, 2022 | Glossary, Patients
download Giving input to advice about what is funded on the Medicare Benefits... 
by Patient Voice Initiative | Oct 5, 2021 | Patients
by Patient Voice Initiative | Oct 5, 2021 | Patients
by Patient Voice Initiative | Oct 5, 2021 | Patients
by Patient Voice Initiative | Oct 5, 2021 | Patients
by Patient Voice Initiative | Oct 5, 2021 | Patients
by Patient Voice Initiative | Oct 5, 2021 | Patients
by Patient Voice Initiative | Oct 5, 2021 | Patients
by Patient Voice Initiative | Oct 5, 2021 | Patients
by Patient Voice Initiative | Oct 5, 2021 | Patients
by Patient Voice Initiative | Aug 6, 2021 | Patients
by Patient Voice Initiative | Sep 12, 2020 | Carer Resources, Healthcare Consumer Engagement, Patient Engagement, Patient Voice, Patients, PVI Resources, Tip Sheets, Tips and guides
You know people are interested in learning from your patient or carer knowledge, but what is it that you know, that they don’t know? This sheet is to help you begin to get to know your patient or carer expertise. Knowledge-Reflection-Sheet-FINAL-compressed... 
by Patient Voice Initiative | Jul 6, 2020 | Carer Resources, Consumer Comments, More information about PBAC, Patient Groups, Patients
by Patient Voice Initiative | Jul 6, 2020 | Carer Resources, Patient Groups, Patients, PVI Resources
A two-page guide to the different pathways for accessing medicines and other healthcare treatments in Australia. Online version Trevor-Evans-information-sheet-compressed download Please consider the environment before printing.... 
by Patient Voice Initiative | Sep 2, 2019 | Carer Resources, Patient Groups, Patients, PVI Resources
Quick-guide-to-how-medicines-are-listed-compressedV2 ... 
by Patient Voice Initiative | Sep 2, 2019 | Consumer Comments, Healthcare and Medicine, Healthcare Consumer Engagement, Patient Engagement, Patient Group Engagement, Patients
Introduction Access to required medicines is considered part of the Right to Health, which was declared a social right in the World Health Organization Constitution (1946) and the United Nations’ Universal Declaration of Human Rights (1948). Within the realm of access... 
by Patient Voice Initiative | Aug 12, 2019 | Carer Resources, Health Technology Assessment, Patient Groups, Patients
view online HTAi Glossary for Consumers and Patients – A beginner’s guide to the words used in health technology assessment... 
by Patient Voice Initiative | Aug 12, 2019 | Carer Resources, More information about PBAC, Patient Groups, Patients
download Richard De Abreu Lourenco, CHERE, University of Technology Sydney19 February... 
by Patient Voice Initiative | Aug 12, 2019 | Carer Resources, More information about PBAC, Patient Groups, Patients
Tip-Sheet-for-Submitting-Consumer-Comments-to-the-PBAC-compressedJuly2020 download This tip sheet was written by Lisa Briggs, a Stage IV Lung Cancer Patient and Advocate, whose long experience advocating for life saving drugs to be listed on the PBS means she... 
by Patient Voice Initiative | Aug 12, 2019 | Carer Resources, More information about PBAC, Patient Groups, Patients, PVI Resources
How you can make a difference. PBAC seeks comments from patients and the community to help them better interpret the evidence and to address gaps and uncertainties in the evidence. As the process already involves expert clinicians and researchers, Consumer Comments... 
by Patient Voice Initiative | Aug 12, 2019 | More information about PBAC, Patients, PVI Resources
download This tip sheet has been written to encourage patients and health consumers to start getting ready to provide input to PBAC well before a treatment is listed on the agenda. By starting early you’ll be better equipped to provide information that... 
by Patient Voice Initiative | Aug 12, 2019 | Carer Resources, Healthcare and Medicine, Patient Groups, Patients
BMSA0551_HTA-Process_Infographic_AW06 ... 