How you can make a difference.
PBAC seeks comments from patients and the community to help them better interpret the evidence and to address gaps and uncertainties in the evidence. As the process already involves expert clinicians and researchers, Consumer Comments are a chance for PBAC to learn from the expertise gained from living with a condition. This is why patients and health consumers are sometimes called "lived experience experts".
So, what can you tell PBAC that other experts don’t know? You can inform them about:
Your (or your members’) unmet needs on the current treatment.
What outcomes matter most.
Differences in how healthcare/treatment is provided and what that might mean for patients.
Benefits of treatment (if you have tried it) or desired benefits (if you have not tried it).
Consequences of symptoms, side effects and benefits.
Consequences of rules for starting/stopping treatments.
Your usual treatment and if the comparator in the assessment is appropriate.