by Patient Voice Initiative | Feb 2, 2024 | Patient Groups, Patients
Involve Australia, a community-led project coordinated by Australian Genomics, is informed by an expert working group which includes patient advocates, genetic patient support and advocacy group leaders and researchers. It aims to give the public a stronger voice and... 
by Patient Voice Initiative | Oct 27, 2023 | Carer Resources, Patient Groups, Patients
Patient organisations, patient advocates & online patient communities vary in howthey want to interact with pharmaceutical companies. Our research* found many seek clear & transparent published information (or information about how to easily access it) on the... 
by Patient Voice Initiative | Aug 30, 2023 | Patient Groups, Patients, PVI Reports
Enhancing Patient Engagement in Australia. This project involved a strong partnership between PVI and CaPPRe. Community and Patient Preference Research (CaPPRe) are experts in understanding what people value (their preferences) in all important areas of life. CaPPRe’s... 
by Patient Voice Initiative | Apr 7, 2023 | Carer Resources, Patient Groups, Patients
File name : PVI-Glossary-2023.pdf View Fullscreen ... 
by Patient Voice Initiative | Jun 22, 2022 | Glossary, Patients
download Giving input to advice about what is funded on the Medicare Benefits...