by Patient Voice Initiative | Sep 3, 2019 | Glossary, P
A measurement based on a report that comes directly from the patient (i.e., study subject) about the status of a patient’s health condition without amendment or interpretation of the patient’s response by a clinician or anyone else. PROM is the instrument or tool,... by Patient Voice Initiative | Sep 3, 2019 | Glossary, P
A range of methods to measure the values of patients with a particular condition to explore how they perceive treatments and to understand what is most important to them. by Patient Voice Initiative | Sep 3, 2019 | Glossary, P
In HTA the term is often used for two different activities which complement each other: (1) patient participation (two way communication with patients including patient input such as taking Consumer Comments and enabling patients to take part in HTAs, to enable... by Patient Voice Initiative | Sep 3, 2019 | Glossary, P
Information provided by patients, their representative groups or caregivers. It can be written or verbal and is based on knowledge gained from living with a condition. It is not mediated by researchers and aims to aid value judgements and add value to decision-making... by Patient Voice Initiative | Sep 3, 2019 | Glossary, P
Evidence from research into patients’ experiences, preferences and perspectives, conducted using robust scientific methodology and able to be critically assessed like other scientific evidence.