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August 2020

Patient Based Evidence: Using patient preference research for PBAC/MSAC

7 August at 10:00 am - 11:30 am
Free

Webinars for patient groups and communities wanting to know about patient preference research for reimbursement decisions in Australia The Patient Voice Initiative invites patient groups and communities to join us for this three-part webinar series on patient-based evidence. In this webinar, we'll focus on answering your questions about patient preference studies.Including: Data that makes a difference and what patient-based evidence can add (Jo Watson, PBAC Deputy Chair) What is patient preference research and what can it do? (Dr Simon Fifer,…

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Patient Based Evidence: Using Patient Reported Outcomes Measures (PROMs)

14 August at 10:00 am - 11:00 am
Free

Webinars for patient groups wanting to know about Patient Reported Outcome Measures (PROMs) research for reimbursement decisions The Patient Voice Initiative invites patient groups and communities to join us for this three-part webinar series on patient-based evidence. In this webinar, we'll focus on answering your questions about Patient Reported Outcome Measures (PROMs) research for reimbursement decisions in Australia, especially PBAC and MSAC.Including:What is PROMS research and what can it do? (Prof Rachel Morton, The University of Sydney)How and why NeuroEndocrine…

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Patient Based Evidence: Using qualitative research for PBAC/MSAC

21 August at 10:00 am - 11:00 am
Free

Webinars for patient groups and communities wanting to know about qualitative research for reimbursement decisions in Australia The Patient Voice Initiative invites patient groups and communities to join us for this three-part webinar series on patient-based evidence. In this webinar, we'll focus on answering your questions about qualitative research for submissions to PBAC and MSAC.Including:What is qualitative research and what can it do? (Dr Stephen Holden, Adjunct Professor, Macquarie Graduate School of Management )How and why a patient group used…

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This workshop helped me understand how we can better advocate for access to medications for people with Crohn’s or ulcerative colitis. You walk away knowing exactly what to ask consumers, so that you can provide PBAC with the information they need to make informed decisions. We will change the way we collect patient feedback about clinical trial medications as a result of this workshop. The speakers were experts on this topic.   ” 

– Wayne Massuger, Crohn’s & Colitis Australia

I came into this not knowing anything about consumer engagement or what to expect. This was fantastic. Thank you for creating this excellent and educational workshop. The wider community needs to engage in this!!!

– Workshop participant

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