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04 March 2020
How patient groups can develop evidence about members’ needs, preferences & experience for input to PBAC/MSAC

Workshop for patient groups held in two-parts over two days: 4 March and 7 August 2020

  • How you can collect and report useful data (inhouse) for Pharmaceutical Benefits Advisory Committee (PBAC) submissions
  • How you can work with patient-based evidence experts to produce robust evidence for PBAC

This two-part interactive workshop is provided by the Patient Voice Initiative in collaboration with the Consumer Evidence and Engagement Unit, Office of Health Technology.

Part 1: Collecting and reporting data for PBAC/MSAC input

9.30am -4.30pm Wednesday 4 March 2020, Sydney

Interactive sessions shaped by your needs, including:

• Data that can make a difference – Prof Andrew Wilson, PBAC Chair

• Spinal Muscular Atrophy’s experience – Julie Cini , SMA CEO

• Identifying the data you need – Dr Sally Wortley, Consumer Evidence and Engagement Unit, Office of Health Technology Assessment, Dept of Health

• Ethical considerations – Dr Anna Scott, Bond University

• Recruitment, Asking good questions; Approaches: surveys, interviews, discussion groups; Preparing reports – Panel of experts

Part 2: Expert-led overview of key methods

9.30am -4.30pm Wednesday 7 August 2020, Sydney

Interactive sessions shaped by your needs, including

• Data that can make a difference – Jo Watson, PBAC Deputy Chair and Consumer Rep

• Patient preferences – Dr Simon Fifer, CaPPRe

• Australian patient group examples

• Patient-Reported Outcome Measures (PROMs)

• Qualitative methods

• Lunch with researchers to discuss ideas

• Grant writing skills

Register once for both sessions. Spaces are limited.

The workshop is being tailored to address the needs of those who register and the registration list (only name and organisation) will be shared with presenters to aid their preparation.

We are pleased to provide this training free to support the patient voice in healthcare decision-making and grateful to our sponsors.

Gold sponsors:

• Bristol-Myers Squibb

• Lilly

• Sanofi

Silver sponsors:

• Astra Zeneca

• Biogen

• Janssen

• Medicines Australia


• Pfizer

• Shire/Takeda

In-kind sponsors:

• CaPPRe

• Rare Cancers Australia

Further information: ann.single@patientvoiceinitiative.org.au

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Rydges Sydney Central
28 Albion Street
Surry Hills, NSW 2010 Australia

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