Here you’ll find more answers to your questions
What's in the library
Here are downloads of tips and guidance, plus we’ve added some helpful documents, so you don’t have to search for them. To save you time, we’ve focused on documents which answer questions that arose during PVI workshops (especially if they come with a good diagram).
Why is it grouped
To make it easier to find what matters to you, information is sorted into three groups: information for patients; carers; and patient groups. Don’t like being put into a box? Select ‘All’ to see everything on the site.
Tip Sheets and Guides
HTAi guide for patient groups on collecting and reporting information for patient group submissions (HTAi)
This large, detailed guidance is based on work done in Canada by pCODR. It’s valuable reading for patient groups collecting and report information for input into PBAC....
HTAi Glossary for Consumers and Patients – A beginner’s guide to the words used in health technology assessment (HTAi)
Useful source for looking up terms used in assessments, especially terms about clinical evidence and economics....
It would be beneficial for the community if there was a way for us to help provide information to our community. However for us to do that we would need to have access to the information.
– Vanessa Richards, Marfan Syndrome patient, Rare Disease Advocate and Secretary of the Marfan Association of Queensland
We need all this on a website, so we can share it online.
– Patient participant at PVI workshop
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