Resource Library
Here you’ll find more answers to your questions
What's in the library
Here are downloads of tips and guidance, plus we’ve added some helpful documents, so you don’t have to search for them. To save you time, we’ve focused on documents which answer questions that arose during PVI workshops (especially if they come with a good diagram).
Why is it grouped
To make it easier to find what matters to you, information is sorted into three groups: information for patients; carers; and patient groups. Don’t like being put into a box? Select ‘All’ to see everything on the site.
useful sites
Having trouble finding a decision-makers site? Here are some useful links.
Tip Sheets and Guides
QALYs (National Health Council)
If you prefer to listen than read, this National Health Council (USA) educational module provides a clear and detailed explanation of QALYs.
...Guide to lingo (National Health Council)
If you prefer to listen than read, this National Health Council (USA) educational module provides clear explanations of 11 common assessment terms.
...HTAi Glossary for Consumers and Patients – A beginner’s guide to the words used in health technology assessment (HTAi)
Useful source for looking up terms used in assessments, especially terms about clinical evidence and economics.
...Drug reimbursement in Australia (Health consumer advocacy)
Short guide to PBAC process with useful table of ‘decisive factors’ or key questions considered by PBAC.
...How to make a difference (PVI)
All the content from ‘How to make a difference’ in one easy to download and take away document.
...Preparing for PBAC Consumer Comments – patients and health consumers
A tip sheet explaining how to prepare for making Consumer Comments before a medicine of interest is listed on the PBAC agenda. Also contains useful information about making a comment.
...From medicines to molecules to Australian patient (BMS)
A great two-page guide written by a very experienced patient who understands how PBAC works and checked by HCCC.
...It would be beneficial for the community if there was a way for us to help provide information to our community. However for us to do that we would need to have access to the information.
– Vanessa Richards, Marfan Syndrome patient, Rare Disease Advocate and Secretary of the Marfan Association of Queensland
We need all this on a website, so we can share it online.
– Patient participant at PVI workshop
Useful sites
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