Here you’ll find more answers to your questions
What's in the library
Here are downloads of tips and guidance, plus we’ve added some helpful documents, so you don’t have to search for them. To save you time, we’ve focused on documents which answer questions that arose during PVI workshops (especially if they come with a good diagram).
Why is it grouped
To make it easier to find what matters to you, information is sorted into three groups: information for patients; carers; and patient groups. Don’t like being put into a box? Select ‘All’ to see everything on the site.
It would be beneficial for the community if there was a way for us to help provide information to our community. However for us to do that we would need to have access to the information.
– Vanessa Richards, Marfan Syndrome patient, Rare Disease Advocate and Secretary of the Marfan Association of Queensland
We need all this on a website, so we can share it online.
– Patient participant at PVI workshop
No Results Found
The page you requested could not be found. Try refining your search, or use the navigation above to locate the post.