This document explores the power of patient registries in advancing medical research and improving healthcare outcomes. Authored by a diverse team of experts, this informative guide provides valuable insights into the benefits of patient registries, their technical...
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Involve Australia – Guidelines for Community Involvement in Genomic Research
Involve Australia, a community-led project coordinated by Australian Genomics, is informed by an expert working group which includes patient advocates, genetic patient support and advocacy group leaders and researchers. It aims to give the public a stronger voice and...
Holiday Gift Guide 2023
Interacting with Patient Communities: Areas for Pharmaceutical companies to consider
Patient organisations, patient advocates & online patient communities vary in howthey want to interact with pharmaceutical companies. Our research* found many seek clear & transparent published information (or information about how to easily access it) on the...
PVI CaPPRE Enhancing Patient Engagement in Australia Report 2023
Enhancing Patient Engagement in Australia. This project involved a strong partnership between PVI and CaPPRe. Community and Patient Preference Research (CaPPRe) are experts in understanding what people value (their preferences) in all important areas of life. CaPPRe’s...
A to Z Patient Voice Initiative Glossary
Giving input about what is funded on the Medicare Benefits Schedule
Giving input to advice about what is funded on the Medicare Benefits Schedule
National Medicines Policy Review
PVI believes it is critical that the principles enshrine the agency and diversity of consumers, and objectives such as ‘timely access’ reflect consumer perspectives and priorities.