by Patient Voice Initiative | Feb 10, 2026 | Patients
Open access book by 120+ authors (including 3 out of 4 chapters with a patient author) on how participation and research into patient aspects (needs, preferences, experiences and perspectives) improves processes to guide decisions about the funding of healthcare (such... 
by Patient Voice Initiative | Mar 8, 2024 | Patient Groups, Patients
This document explores the power of patient registries in advancing medical research and improving healthcare outcomes. Authored by a diverse team of experts, this informative guide provides valuable insights into the benefits of patient registries, their technical... 
by Patient Voice Initiative | Feb 2, 2024 | Patient Groups, Patients
Involve Australia, a community-led project coordinated by Australian Genomics, is informed by an expert working group which includes patient advocates, genetic patient support and advocacy group leaders and researchers. It aims to give the public a stronger voice and...
